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Developing the Biomarkers in Oxford Project

Reading Time: 2 minutes Biomarkers in Oxford (BioMOx) is a research project with the aim of identifying a diagnostic biomarker for MND, which could be used to track the progression of this condition. What are biomarkers? The aim is to identify biomarkers, or ‘biological fingerprints’ for MND. This could be through testing blood and spinal fluid (CSF) samples from…

TONiC: Creating a quality of life ‘toolkit’ for MND

Reading Time: 2 minutes The MND Association funds several healthcare research projects that aim to improve care and symptom management for people living with MND. One such project is TONiC, which is examining factors that influence quality of life in patients with neurological conditions, including MND. So what is TONiC? The Trajectories of Outcome in Neurological Conditions (TONiC) study…

Take part in TONiC

Reading Time: 4 minutes The MND Association funds healthcare research that aims to improve care management for people living with MND. The TONiC study is looking at factors that influence quality of life, and is inviting people living with MND to take part in the next phase of the project. What is TONiC?

On the tenth day of Christmas MND research gave to me: Ten research studies we helped promote in 2014

Reading Time: < 1 minute “On the tenth day of Christmas MND research gives to you… TEN research studies we helped promote and recruit for in 2014” Last year we helped promote and recruit people living with MND to take part in 10 different studies. From biomarker studies, to survey’s on the risks v benefits of new medicines, we covered…

Twitter and MND

Reading Time: 2 minutes With over 140 million active users Twitter has grown up a lot since it arrived in 2006. This means that Twitter can be an extremely powerful tool for engaging, influencing and reaching out to a wide range of audiences across the world. Twitter is a social network (like Facebook and Google+) which allows you to…

It’s OK to ask about MND research

Reading Time: 2 minutes The National Institute for Health Research (NIHR) has launched their ‘It’s OK to ask campaign’ which encourages patients and the public to ask about clinical research. The campaign was launched on Monday (20 May 2013), ‘International Clinical Trials Day’ and the NIHR will be promoting this campaign throughout 2013/14. “Clinical research is the way in which…