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Deserved recognition

Reading Time: 2 minutes At the end of the opening session of the International Symposium on ALS/MND, two members of the MND research community were recognised for their contribution to the field. Professor Orla Hardiman, from Trinity College, Dublin is this year’s recipient of the Forbes Norris Award. Presented by Dee Forbes Norris, this award recognises care and compassion…

Cannabis-based products for medicinal use

Reading Time: 7 minutes In November 2018 the Home Office released a draft Guideline scope for Cannabis-based products for medicinal use in which they announced that specialist doctors (like consultant neurologists) on the Special Register of the General Medical Council will be able to prescribe cannabis-based medicinal products to some patients. Before this, the only cannabis-based medicines licensed for…

Are there differences between FTD alone and FTD-MND?

Reading Time: 3 minutes The last of our FTD awareness week blog posts is focussing on a healthcare project looking into FTD (frontotemporal dementia) and FTD-MND (FTD when combined with MND). The project began last year and is being part-funded by us. Professor Julie Snowden and PhD student Jennie Adams at the Cerebral Function Unit in Salford (University of Manchester)…

Raising the profile of Kennedy’s disease

Reading Time: 4 minutes Did you know the MND Association also supports people who have Kennedy’s disease? In May a new clinic specialising in Kennedy’s disease opened in London at the National Hospital for Neurology and Neurosurgery. To mark this big step in helping support and treat people with Kennedy’s disease, Katy Styles who campaigns on behalf of the Association, and whose husband Mark has…